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- Archive 2007
Free Tay-Sachs screening in Hampstead
Free drop-in Tay-Sachs screening to be held on Sunday 27 January at South Hampstead Synagogue
Are you a carrier of the Tay-Sachs gene? People who might want to become parents in the future are urged to attend a drop-in screening session at South Hampstead Synagogue on Sunday 27 January at which blood samples will be taken in order to detect carriers of the fatal disease.
This will be the first time the synagogue in Eton Villas has hosted a screening. It is organised by the charity Jewish Care as part of its ongoing programme to prevent Tay-Sachs, as babies who are born with the condition will not live past the age of four. The inherited genetic disorder is especially prevalent in the Jewish community where it is estimated that one in every 25 people is a carrier.
Tay-Sachs coordinator Jess Clare said: “We must help people to avoid future tragedy as it is heartbreaking to lose a baby to Tay-Sachs. Both parents need to be carriers for a child to be affected so it is possible to prevent this from happening - I would urge all young Jewish people over the age of 16 to come forward and be tested.”
The blood samples will go to Guy’s Hospital for analysis and the results, which are confidential, will be sent out at a later date.
Tay-Sachs consultant Dr Philip Koch lost two daughters to the disease in the 1960s and he later developed the enzyme test to detect the gene. He said: “The thing about Tay-Sachs is that it can hide for generations and you might not be aware of it. I decided to get involved with researching the condition and came up with a test that could help others. But so far there isn’t a cure.”
The screening session runs from 11am to 3pm and people can either turn up on the day or book an appointment. Call Jess Clare on 07890 611119.
